Disabled, the questionnaire of shame
One wonders who came up with this unworthy thought of the questionnaire developed by the Lazio Region. The intervention of Francesco Provinciali
After being received by the social-health district of Nettuno and distributed to families with disabled people but then withdrawn by the municipal administration itself due to the indignant reactions of the recipients and the outcry aroused in public opinion, the questionnaire developed by the Lazio Region to test the "Stress" of the caregivers who had filed an application in order to access the compensatory benefits for disabilities – already defined as scandal or shame – landed in the Municipality of Rome and forwarded to the families of the metropolitan area, raising the same fuss as expected .
Now the offending form has returned to the sender: the Lazio Region – which elaborated it as Caregiver burden inventory or "Inventory of the care load" in the resolution that recognizes the figures of family caregivers, in the form of guidelines and information, will evaluate whether to correct it , withdraw it or send it back into circulation with the improbable clarifications which, however, would not justify the initiative which immediately appeared unspeakable, unsuitable and in bad taste.
Having read some questions, one wonders who came up with this unworthy thought: "From zero to four, how ashamed are you of your child or your disabled family member?", "How much resentment do you feel towards him?" do you feel at ease when you have friends at home? ”,“ Do you feel that you are losing life? ”.
With a specification: one means a little, two moderately, three a lot and four a lot. This initiative demonstrates the scarce or no competence in the disability sector of those who elaborate, validate and circulate such forms (as necessary as the ISEE to access the supports) defined as a "scientific instrument" indicated by a resolution of the regional council among the possible tools to be used by municipalities and consists of a self-assessment method (subjective perception of stress, simple but effective, referring to five different aspects of the family caregiver condition: objective, psychological, physical, social and emotional load (subjective perception).
The goal is to identify suitable support measures for the families concerned but in the envelope of a psychologism with a low human and cultural profile. Presented as “a tool for assessing the care burden, capable of analyzing its multidimensional aspect”, in reality useless, harmful and a prisoner of the neologisms of the 4.0 language.
Therefore the family members of a disabled person should declare not only the inconvenience but how much shame, even "resentment", they feel for their situation but one wonders who would ever solve their eventual emotional imbalance. We are the usual: space is given to professional incompetence that collects data on the verge of violation of privacy and constitutional principles, without a shred of common sense and humanity, and we put on the hat of political and institutional investiture. Forms like that shouldn't be running at all. The distress or hopes of caregivers are not publicly traded goods with the assistance due to people with disabilities. Shame then yes: but all for this initiative.
This is a machine translation from Italian language of a post published on Start Magazine at the URL https://www.startmag.it/sanita/disabili-il-questionario-della-vergogna/ on Sat, 25 Jun 2022 05:55:23 +0000.